Tetralogy of Fallot (TOF) with Pulmonary Atresia is the more severe form of TOF. It is a type of heart defect that a child is born with. With this condition, there are normally 5 abnormalities in the heart which can cause symptoms and difficulties for a child. These abnormalities may include: a hole in the wall of the heart, the pushing of the aorta over to the right side of the heart, a thickened ventricle, a narrowed valve, and abnormal arteries. Children born with TOF (with Pulmonary Atresia) will require surgery, usually before 6 months of age. Some children require more than one operation, sometimes over a period of months or years. Diagnoses of TOF usually occurs soon after birth. The most common symptom is a bluish tint to the skin, lips, and nails, particularly after crying or feeding. Other symptoms may include breathlessness, tiredness, poor weight gain, irritability, loss of consciousness, or a heart murmur. Some children with TOF can experience ‘Tet Spells’ into toddlerhood. These are caused by a rapid drop in the amount of oxygen in the blood. These spells may be triggered by a stressful experience, an emotional response, crying or feeding. Squatting naturally increases blood flow to the lungs. Toddlers and older children may instinctively squat during a Tet Spell.
Medical care plans are a useful tool to be sure you are providing the very best possible care for the children in your service as well as documenting your commitment to staff training and care when inspected.
- Child's Record Sheet
- Useful Information for Staff/Carers including diagrams showing what the TOF defect is and how to be aware of signs that intervention is necessary
- Log of Staff Inductions on TOF with Pulmonary Atresia
- Allergy Alert Notice and Cover Sheet
- Sample Letter to Parents
- Medical Consent and Administration Form